Make your own free website on

Huntington's Disease Caregiving

Personal Articles/Stories
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
Blank page
This section is to link articles written by caregivers of loved ones with Huntington's Disease or those written by people with Huntington's Disease about their caregivers. 
If you'd like to share your story with others, please submit it to me at the below email address.  You can remain anonymous if you'd like, just use your first name.
Your Name
Your story title
A brief description
A link to your story in a word document
Think about it......if you've written something you'd like to share,send it to me!
Here's a few to get you started!

The Common Bonds of Caregiving
by Suzanne Mintz
This article speaks for all caregivers and poignantly expresses the feelings each of us carry with us daily. It is something you might consider sharing with your family and friends.
Read article:
This Article In Word

Caregiver Grief: Dealing with Ongoing Loss
By Pat Kaufman
Illnesses that keep changing can bring grieving and re-grieving,"
"As caregivers go through the various stages of the illness with
their loved one, they may experience, variously, sadness, anger, weepiness, depression, even despair," Dr. Bernardi counsels.~~~

Although not an HD caregiver, this caregiver's article is excellent and applies to what all caregivers go through.  Good reading!
Loving Caregivers
By Louise W.
A person with HD
I admire caregivers so much for being there for us, being the warriors and volunteers and spouses; mothers, daughters, husbands, fathers or brothers, etc. Tiptoeing around us when we're miserable. Putting up with our kicking and punching in the night or midnight wandering. How can you sleep when you think someone is going to fall down the stairs at 3:00 a.m.? Not to mention that we get our memories mixed up and we're slow to shop, make decisions, or even get up.
A heart-warming true story of Michael, a young man with Juvenile Huntington's Disease, receiving special attention from Queen Elizabeth during her October 2002 visit to Canada.  Includes a very poignant message from his grandmother, Betty Ann.